Patient Warrior Posts

We’re holding a shoe drive with the help of Funds2Orgs to raise money for Cure SPG52. We’re collecting new and gently used shoes of any…

We just received amazing news from Cure AP-4 about the status of the proof of concept for SPG52 gene therapy! Dr. Mimoun Azzouz, Cure AP-4’s…

The 26 Shirts “Orchard Park Trail” sale ended last night and in two weeks they raised $2,944 for Cure SPG52! We’re so beyond grateful for…

Celebrate the Bills win with us! We’re so excited to announce we’re part of the 26 Shirts campaign that kicked off Nov 18th to raise…

We are just driving home from a whirlwind two days in Boston where we attended our first Cure AP-4 conference. We connected with AP-4 disorder…